We have found a Dr in Sydney who does awesome minimally invasive brain surgeries and he is doing the brain port surgeries! I was talking to a friend this morning who recommended him as someone who takes on challenging cases that others wouldn't. He is pretty much the top of his field.
So! Plan of action after discussion with Hubsand, contact doctor of awesometude and see what he says! Plans are afoot for a trip to Sydney :) Let the roller coaster ride continue!