Thursday, December 22, 2011

10 Month Brainaversary!

Things to update. I had my scan and it came back to hypolordosis and osteophytes. So no spinal surgery for me *happy dance* I will be having LOTS more physiotherapy but I can mange that. My latest round of bloods came in as well. Best bloods EVER! No cancer markers found *Happy dance again*
Have been madly preparing for Christmas which got sneaky and caught up while I wasnt looking. I have just finished the 2nd christmas cake (the first was devoured by the boys). The pudding is ready to go. Shopping is done (I think) I made a list and then promptly forgot to update it in the middle so I THINK I have everyone covered but there is a lingering doubt... the chilling thought I have forgotten someone cringe.

I made 6 million steps the other week which was incredibly awesome. It gives me a great sense of achivement. I can now start exercising properly which is something I haven't been able to do for oh............. 8 years. I have an amazing team helping me out with all of this and can not believe how lucky I am.

Have a safe an happy holiday!
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Thursday, December 8, 2011

Hiccups

I'm now sitting at about 9 and a half months post op. Since I last posted there have been a few developments. I am heading of for a scan of my neck (3 doctors I have seen so far are recommending surgery) for the profound weakness in my left arm. Tomorrow I have a blood test. Today I am supposed to be returning a call to "Synapse" the State Brain Injury Association. 
In a lot of ways I'm getting pretty frustrated with it all. I am not looking forward to or wanting to have ANY surgeries in the new future let alone a spinal surgery so soon after brain surgery. I am not pleased about being classified/boxed/classed as having "Acquired Brain Injury" either. However I have decided that I will use whatever resources are available to me to work as hard as I can to get better. However long it takes or hard it gets. I have fought pretty darn hard to get this far, I'm not about to give up now!
I made a video about my journey through brain surgery to help me remember things and keep things in order; it has helped me to do that and much more. Another photographer on the other side of the world to contact me as he is facing brain surgery himself and was inspired by my story that life does go on and that photography isn't something that has to go away; in fact it can be a great tool. I too have been inspired throughout this journey (it is not over yet) by some incredible artist and photographers.
I could not have done any of this without the support, love and help of my family and friends and for them I am eternally grateful. All these bumps are just hiccups in the road and can be overcome. Life does and will continue to improve and so will I.
Stay safe, inspired and look after each other.

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