Thursday, June 28, 2012

ABI difficulties, ways to work through them



This is just a little bit of the stuff I'm working through with and around ..........


I have some Visuo-Spatial deficits post op. I find this to be embarrassing at best, frustrating and something I am trying constantly to work with. I have just ordered a high school certificate mathematics workbook online to work my way through. I am also using Lumosity.com for brain training as well. If you can think of anything that may help I'd appreciate feedback and suggestions. The bolded things are things I have problems with. Some things I have had difficulty with I have modified the way I do things,

Cooking I use a recipe and go through it before I start, follow it to the letter as i go through and then check it again at the end. I am finding if it is something I cook a lot I need to check the recipe less.

Sewing I have to use a pattern and follow all the instrustions or things just dont work. Pre op I didnt use patterns at all... this is particularly frustrating to me but I realise that I may not get back to patternless sewing. 

I am going to go on Monday to see about starting study again. I expect it will be a challenge but I have to start somewhere!   

Below hijacked from SynapseA Closer Look at Visuo-Spatial Skills

While deficits may occur within each sensory system, the area of visuo-spatial is often more dramatic. Visuo-spatial deficits may include difficulties in the following areas: 

drawing or copying objects
recognising objects (agnosia)
telling left from right - eg on my flight to Sydney my brain kept telling me i was flying in the wrong direction because the sun was on the "wrong" side of the plane.
doing mathematics (discalculia) - I actually have pieces of my mathematics missing. 6 times tables, theorem etc. Some I can do if i have pen and paper most I cannot do in my head
analysing and remembering visual information - this kills me. For a visual person not to remember peoples faces or be able to remember patterns is a bit like cutting my arms off
manipulating or constructing objects - Cannot sew without patterns or instructions ..... totally not the old me 
awareness of the body in space e.g. climbing stairs
perception of the environment e.g. following directions.

People may experience select difficulties or several deficits depending upon the nature of their injury. One well known syndrome involves neglect where the individual ignores certain aspects on one side of the world in front of them, which is most typically the left hand side. For example, a person with neglect may ignore food on the left side of a plate or fail to copy aspects on the left side of a picture.

Retraining skills

One approach involves retraining the skill until the person regains, in varying degrees, the functional skill. Retraining typically involves repetitive and intensive exercises for a specific skill or task e.g. practise at drawing an object while receiving feedback. This approach tends to be more effective with specific skills.

Changing the environment or expectations

A second approach involves modifying the environment to provide more support or reduce the demands of a particular skill. One example may involve building a ramp or fitting a handrail for a person who finds it difficult to climb a flight of stairs to their house. Sometimes, the change in the environment can be as simple as shifting furniture to ensure greater space when walking around the house. The person may also learn to adjust their expectations and educate other people about their difficulties.

Compensatory strategies

People often learn or may be taught a range of strategies to compensate for visuo-spatial problems. These strategies may be as simple as a person learning to turn their head or body to scan their environment, or moving objects into their ideal position. A range of specialised technology or equipment may also be available to fit into a person’s home or assist with community access. Some external prompts may include colour stickers for object recognition, bright lights on the floor, musical or sound prompts, stencils or transparent paper for copying, hand rails and other safety devices. An example of a compensatory approach for object recognition involves the person learning to rely more upon other senses such as touch, hearing and smell. They may choose to shut their eyes to avoid inconsistent information from the visual system. The rehabilitation strategies described may be developed by a neuropsychologist, occupational therapist or physiotherapist. The eventual goal of the programme is greater independence and use of self-management strategies. However, family members, friends and support workers can provide valuable support and reinforcement of rehabilitation techniques.

Thursday, June 21, 2012

The end of the 21 challenge

Today is the last day of the 21 Challenge and I have completed mine. I thought i would post the link to the donation page one last time and post all the photos I took for the challenge in this post. I hope you enjoy then as much as I have enjoyed the challenge!

They will remain on  FacebookGoogle+,DeviantArt and on RedBubble :) http://www.openfamilyfundraising.org.au/personalPage.aspx?registrationID=447845&langPref=en-CA

All funds raised go to assist homeless and at risk youth in Australia. the Challenge ends June 21, our longest and probably coldest night of the year.

 1. Pedalers' Paradise
 2. Green Living
 3. The Letter C
 4. Life Support
 5. Momentum
 6. Boldly Bearded
 7. The colour Red
 8. Less stress, More awesome
 9. What a Gem
 10. Communication
 11. Toy Story
 12. The rule of Trees
 13. Give me a sign
 14. Chillin
 15 Keeping Time
 16. Most Underrated
 17 Square
 18. Minimal
 19 My Earth, My Impact
 20. Surprise
21  The Awakening

Friday, June 15, 2012

1 year 4 months

I'm a day early, tomorrow is my 16 month brain birthday but in light of recent events and the fact that I'm "leaving on a jet plane" tomorrow to go and spend some time with Alonya and Rick I thought I would knock this one over early!

I thought I was busy in my last brain catch up post, this one feels like a lifetime has passed in the month in between! I guess I should start where I left off in my last monthly update. I did the 5km for the Kim Walters foundation and blogged it here . That afternoon I had a fall up the back stairs which was a bit disturbing and the day after another 2 falls up the back stairs. You can read more about that here That all kicked off into ta trip to the doctor and then a night in the hospital for an PEEG  (Prolonged Electroencephalogram)  .

Meanwhile, I have been doing the 21 Challenge to raise funds for homeless and at risk youth. Not been making an awful lot in terms of fundraising but I have been challenging myself daily with it. Most days I have an idea of what I would like to achieve for the theme but I usually end up with something quite different for one reason or another. This thinking without a box thing is wonderful.

I have signed up for the Brisbane running festival in August and the Bridge to Brisbane in September, both of them I am raising funds for the Brain foundation. Big cause close to my heart. They do fantastic work in many brain related areas, tumours, migraine, stroke, epilepsy and so much more. November I am part of a team put together by my youngest brother to do Relay for Life raising funds for the Cancer Council.

And now for the really big news.... My amazing friend Ted Ewen made me cry on Wednesday night! I met Ted a few months before I went off for my brain surgery. He has been a wonderfully supportive friend all the way from Denmark. He has sent me books to read, talked to me daily, and held my hand virtually. On Wednesday night Ted made me cry like a baby (and most of Thursday as well) and has left me quite stunned. Ted has nominated me for The 2012 Pride of Australia Courage Medal. 
Ted has made a post on Google plus here asking for supportive comments if you would like to add anything. 


I have also been looking into doing some study to improve my "employability" so I'll be talking to the people at TAFE when I get back from Sydney. I'm also looking at doing some volunteer work so I have some more recent experience. The biggest stumbling blocks I am having with finding work seems to be that I have been ill for so long my most recent working experience is ancient history so until I can get paid work I may as well do some unpaid work to get that experience back!

Tomorrow is the beginning of a new adventure :) I'll see you all when I get back! meanwhile here are days 14 and 15 of the 21 challenge....


21 Challenge photos are uploaded to FacebookGoogle+,DeviantArt and on RedBubble......... 

"Chillin"
" Keeping Time"

1. Pedalers' Paradise
2. Green Living
3. The Letter C
4. Life Support
5. Momentum!
6. Boldly Bearded
7. The Colour Red
8. Less Stress, More Awesome!
9. What a Gem!
10. Communication
11. Toy Stories
12. Rule of Trees
13. Give Me a Sign
14. Chillin'
15. Keeping Time
16. Most Underrated
17. Square
18. Minimal
19. My Earth, My Impact
20. Surprise!
21. The Awakening


Wednesday, June 13, 2012

21 Challenge Days 12 and 13 + more things..

I'll be taking a photo every day for 21 days and uploading them on FacebookGoogle+,DeviantArt and on RedBubble......... what will you do?

http://www.openfamilyfundraising.org.au/personalPage.aspx?registrationID=447845&langPref=en-CA

All funds raised go to assist homeless and at risk youth in Australia. the Challenge ends June 21, our longest and probably coldest night of the year. 


 Rule of Trees
Give Me a Sign

1. Pedalers' Paradise
2. Green Living
3. The Letter C
4. Life Support
5. Momentum!
6. Boldly Bearded
7. The Colour Red
8. Less Stress, More Awesome!
9. What a Gem!
10. Communication
11. Toy Stories
12. Rule of Trees
13. Give Me a Sign
14. Chillin'
15. Keeping Time
16. Most Underrated
17. Square
18. Minimal
19. My Earth, My Impact
20. Surprise!
21. The Awakening

Today I have also signed up for the Brisbane Running Festival on August 5th and the Bridge to Brisbane September 2nd! I'm raising funds for the Brain foundation for both events. They are funding brain research throughout Australia for earlier diagnoses and improved, more effective and efficient treatments to enable normal lifestyles. As you can probably understand if you know me or have read my posts, its a pretty big deal for me.

Monday, June 11, 2012

21 Challenge days 9 10 and 11

I'll be taking a photo every day for 21 days and uploading them on FacebookGoogle+,DeviantArt and on RedBubble......... what will you do?

http://www.openfamilyfundraising.org.au/personalPage.aspx?registrationID=447845&langPref=en-CA

All funds raised go to assist homeless and at risk youth in Australia. the Challenge ends June 21, our longest and probably coldest night of the year.


 What a Gem!
 Communication
Toy Story
1. Pedalers' Paradise
2. Green Living
3. The Letter C
4. Life Support
5. Momentum!
6. Boldly Bearded
7. The Colour Red
8. Less Stress, More Awesome!
9. What a Gem!
10. Communication
11. Toy Stories
12. Rule of Trees
13. Give Me a Sign
14. Chillin'
15. Keeping Time
16. Most Underrated
17. Square
18. Minimal
19. My Earth, My Impact
20. Surprise!
21. The Awakening

"Communication" was taken during my PEEG (
Prolonged Electroencephalogram) Results will be back in 10 - 14 days

Friday, June 8, 2012

21 Challenge Days 5 - 8

I'll be taking a photo every day for 21 days and uploading them on FacebookGoogle+,DeviantArt and on RedBubble......... what will you do?

http://www.openfamilyfundraising.org.au/personalPage.aspx?registrationID=447845&langPref=en-CA

All funds raised go to assist homeless and at risk youth in Australia. the Challenge ends June 21, our longest and probably coldest night of the year.


Boldly Bearded
The Colour Red
Momentum
Less Stress More Awesome
1. Pedalers' Paradise
2. Green Living
3. The Letter C
4. Life Support
5. Momentum!
6. Boldly Bearded
7. The Colour Red
8. Less Stress, More Awesome!
9. What a Gem!
10. Communication
11. Toy Stories
12. Rule of Trees
13. Give Me a Sign
14. Chillin'
15. Keeping Time
16. Most Underrated
17. Square
18. Minimal
19. My Earth, My Impact
20. Surprise!
21. The Awakening

Wednesday, June 6, 2012

Ripples in the Road

Just after my 5km the other weekend I had a bit of an "episode". I fell up the back stairs three times in two days. To be completely honest it scared me half to death. I am kinda paranoid about falling and hitting my head!

I mentioned it to my physio last week when I went to see him, he had wanted to know what the bruises were from *cringe*. Luckily I escaped with not a lot more damage than some bruising. The deal was, I had to go and make an appointment with my GP, who I saw yesterday.

My GP is about as thrilled as my physio was. She's increasing my medication by a factor of 8 and I will be admitted to hospital this weekend for more tests. She believes I had three seizures resulting in the falls. I have no recollection of what happened so that's the most likely reason. When we have all the results in and see how the medication increase goes, we'll know what is what. She is holding off on a new MRI for now.

So we breathe easier because she hasn't sent me straight for an MRI to look for my brain lump growing back and hope that it is epilepsy from the scaring in my brain from surgery. Hoping for a diagnosis of "fatigue" really was wishful thinking on my part I guess.

SO! I hope to be able to smuggle my camera into the hospital and document part of this continuing journey beyond brain surgery.




Sydney trip is still on though. Much baking, relaxing and catching up will be done!


Monday, June 4, 2012

21 Challenge


I'll be taking a photo every day for 21 days and uploading them on Facebook, Google+, DeviantArt and on RedBubble......... what will you do?

http://www.openfamilyfundraising.org.au/personalPage.aspx?registrationID=447845&langPref=en-CA

All funds raised go to assist homeless and at risk youth in Australia. the Challenge ends June 21, our longest and probably coldest night of the year.

Pedalers' Paradise
Green Living
The Letter C
Life Support

1. Pedalers' Paradise
2. Green Living
3. The Letter C
4. Life Support
5. Momentum!
6. Boldly Bearded
7. The Colour Red
8. Less Stress, More Awesome!
9. What a Gem!
10. Communication
11. Toy Stories
12. Rule of Trees
13. Give Me a Sign
14. Chillin'
15. Keeping Time
16. Most Underrated
17. Square
18. Minimal
19. My Earth, My Impact
20. Surprise!
21. The Awakening

Also!
Charity Print Sales
Lee Daniels is feisty, loving, friendly, a magnificent professional writer and fine art photographer. She's an elementary school teacher who continues to teach, love and praise others. She was recently diagnosed with small cell lung cancer. Because of her health situation she's unable to get out and take pictures. Like most independent photographers she doesn't have health insurance. You can imagine the stress and pain this would cause. Lee is a fighter. Let's help her win this fight.

We are a community of photographers who are providing our photographs for a special price to benefit Lee Daniels in her time of need. All proceeds from the sale of prints in the gallery below will be donated to Lee Daniels to help her with the medical costs of cancer treatments. The prints will be sold and fulfilled through SmugMug and Bay Photo Lab.

We are a community of photographers who are providing our photographs for a special price to benefit Lee Daniels in her time of need. All proceeds from the sale of prints in the gallery below will be donated to Lee Daniels to help her with the medical costs of cancer treatments. The prints will be sold and fulfilled through SmugMug and Bay Photo Lab.

We are a community of photographers who are providing our photographs for a special price to benefit Lee Daniels in her time of need. All proceeds from the sale of prints in the gallery below will be donated to Lee Daniels to help her with the medical costs of cancer treatments. The prints will be sold and fulfilled through SmugMug and Bay Photo Lab.





I have submitted this 


Please go and have a look at the amazing images here http://plusonemagazine.smugmug.com/Other/Photographer-Images/23262869_QrVQww#!i=1879420553&k=dgHhWTD&lb=1&s=A and consider purchasing something to grace your walls :)